Kidney information

Most kidney patients want to be involved in their treatment to some degree. To be involved and make decisions you need information. The best source of information is your kidney care team so don’t hesitate to ask questions.

However, sometimes people just want that extra bit of information to supplement what the professionals tell them. There is a wealth of kidney information available; this page signposts you to just some of the resources.

Guy’s and
St Thomas’
Resources

GSTT website

Information about kidney and transplant services.

Also a list of kidney patient leaflets, many of which can be downloaded.

MyKidney website

For information about kidney disease and treatment options. Created by kidney professionals and patients
www.mykidney.org.uk

Holidays

The NKF holiday pages

www.kidney.org.uk/help/holidays

Dialysis Freedom

Information about UK dialysis holidays
www.dialysisfreedom.co.uk
Tel: 01509 808 668

Global Dialysis

Information about dialysis holidays abroad
www.globaldialysis.com

UK Kidney
Charities

National Kidney
Federation

Has a huge amount of information on all the different kidney diseases, treatments, and more.
www.kidney.org.uk

Helpline: 0845 601 02 09

British Kidney Patient
Association

For information and financial support www.britishkidney-pa.co.uk

Kidney
Research UK

For information and research updates
www.kidneyresearchuk.org

Other
Resources

Carers UK

www.carersuk.org

Citizens Advice bureau

www.adviceguide.org.uk

Diabetes UK

www.diabetes.org.uk

Gov.UK (government service & information)

www.gov.uk

PKD Charity (polycystic kidney disease)

www.pkdcharity.org.uk

NHS Choices (healthcare information)

www.nhs.uk

Smokefree (how to quit smoking)

www.smokefree.nhs.uk

Rare Kidney Diseases

www.rarerenal.org

Food

‘Rediscovering Food and
Flavours’

Recipe book for kidney patients
www.lawrencekeogh.com

‘Everyday Eating’

Recipe book created by Guy’s and St Thomas’ for kidney patients, available as a downloadable PDF

About
transplants

NHS Blood and Transplant

Information about organ donation and transplantation
www.organdonation.nhs.uk

Transplant Sport UK

Information about the UK and World Transplant Games
www.transplantsport.org.uk/

Understanding
blood and other
test results

Patient View

www.patientview.org
You need to register via your renal unit.

NKF

The NKF produce guides to blood test results for Dialysis and Transplant patients.

What have we
forgotten?

If you would like to recommend an information resource, let us know and we will try to include it.
info@gsttkpa.org

The GSTTKPA has created this directory of links for all those interested in kidney healthcare. GSTTKPA does not take responsibility for the content of other sites.